{"id":1354,"date":"2023-11-14T14:27:24","date_gmt":"2023-11-14T19:27:24","guid":{"rendered":"https:\/\/www.centre-stopad.com\/?page_id=1354"},"modified":"2025-06-23T14:36:31","modified_gmt":"2025-06-23T18:36:31","slug":"data","status":"publish","type":"page","link":"https:\/\/www.centre-stopad.com\/en\/data\/","title":{"rendered":"CAP (Data Access)"},"content":{"rendered":"<div class=\"wp-block-uagb-container uagb-block-25eea6f1 alignfull uagb-is-root-container\">\n<div class=\"wp-block-uagb-advanced-heading uagb-block-e16f05b5 animated zoomIn\"><h1 class=\"uagb-heading-text\">Canadian Alzheimer Platform<\/h1><p class=\"uagb-desc-text\">Data access<\/p><\/div>\n<\/div>\n\n\n\n<div style=\"height:50px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-eb10fbfa default uagb-is-root-container\">\n<div class=\"wp-block-stackable-image stk-block-image stk-block stk-5b762a8\" data-block-id=\"5b762a8\"><style>.stk-5b762a8 .stk-img-wrapper{width:300px !important;}<\/style><figure><span class=\"stk-img-wrapper stk-image--shape-stretch\"><img loading=\"lazy\" decoding=\"async\" class=\"stk-img wp-image-2336\" src=\"https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/04\/logo-CAP.png\" width=\"651\" height=\"367\" srcset=\"https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/04\/logo-CAP.png 651w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/04\/logo-CAP-300x169.png 300w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/04\/logo-CAP-18x10.png 18w\" sizes=\"auto, (max-width: 651px) 100vw, 651px\" \/><\/span><\/figure><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><em>The <strong>C<\/strong>anadian <strong>A<\/strong>lzheimer<\/em> <em><strong>P<\/strong>latform <\/em>(CAP) is the first Canadian platform equipped with the necessary infrastructure to acquire, harmonize, and share sensitive data on the preclinical phase of Alzheimer's disease following the principle of Open Science.<\/p>\n\n\n\n<div class=\"wp-block-uagb-advanced-heading uagb-block-6ad75cc9\"><h2 class=\"uagb-heading-text\">Data access for the scientific community<\/h2><\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-64a9f93f\">\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-9e9ee04\" data-block-id=\"9e9ee04\"><style>.stk-9e9ee04 {margin-bottom:0px !important;}<\/style><p class=\"stk-block-text__text\"><span style=\"text-decoration: underline;\">Terms of use:<\/span>: For direct access to PREVENT-AD data, you will need to request an account on one of the LORIS databases below, provide your name and email address, and agree to a set of terms of use.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-623b9de\" data-block-id=\"623b9de\"><style>.stk-623b9de .stk-block-text__text{font-size:12px !important;}@media screen and (max-width: 1023px){.stk-623b9de .stk-block-text__text{font-size:12px !important;}}<\/style><p class=\"stk-block-text__text\">* Access to this platform is free of charge for researchers<\/p><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-0ef52900\">\n<div class=\"wp-block-uagb-container uagb-layout-flex uagb-block-07526f3c alignwide uagb-is-root-container\">\n<div class=\"wp-block-uagb-advanced-heading uagb-block-a40cfe52\"><h3 class=\"uagb-heading-text\"><span style=\"color: var(--ast-global-color-2);\" class=\"stk-highlight\">Data for researchers<\/span><\/h3><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Types of data:<\/strong> Demographic, anthropometric, and medical data, lifestyle questionnaires, neuropsychological and neurosensory data, genetic variants, blood biochemistry, CSF protein levels, neuroimaging (MRI\/fMRI, PET scans), Alzheimer\u2019s disease progression scores.<br><br><strong>Years:<\/strong> 2011 to 2023 <br><span style=\"color: var(--ast-global-color-7);\" class=\"stk-highlight\">.<\/span><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-uagb-container uagb-block-3eddc139\">\n<div class=\"wp-block-stackable-image stk-block-image has-text-align-center stk-block stk-150299b\" data-block-id=\"150299b\"><style>.stk-150299b .stk-img-wrapper{width:75% !important;}.stk-150299b .stk-img-wrapper img{object-fit:fill !important;}@media screen and (max-width: 1023px){.stk-150299b .stk-img-wrapper{width:75% !important;}}@media screen and (max-width: 767px){.stk-150299b .stk-img-wrapper{width:100% !important;}}<\/style><figure><span class=\"stk-img-wrapper stk-image--shape-stretch\"><img loading=\"lazy\" decoding=\"async\" class=\"stk-img wp-image-2847\" src=\"https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/06\/Registered-Instance-New-Login-1024x518.jpg\" width=\"1024\" height=\"518\" srcset=\"https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/06\/Registered-Instance-New-Login-1024x518.jpg 1024w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/06\/Registered-Instance-New-Login-300x152.jpg 300w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/06\/Registered-Instance-New-Login-768x389.jpg 768w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/06\/Registered-Instance-New-Login-1536x777.jpg 1536w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/06\/Registered-Instance-New-Login-18x9.jpg 18w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/06\/Registered-Instance-New-Login.jpg 1887w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/span><\/figure><\/div>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-3e41869c wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-fill\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/registeredpreventad.loris.ca\" target=\"_blank\" rel=\"noreferrer noopener nofollow\">Access the data!<\/a><\/div>\n<\/div>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\"><span style=\"color: var(--ast-global-color-2);\" class=\"stk-highlight\"><strong>For open data<\/strong> (MRI only, 2011 to 2017): <a href=\"https:\/\/openpreventad.loris.ca\/\" target=\"_blank\" rel=\"noreferrer noopener nofollow\"><span style=\"text-decoration: underline;\">Click here<\/span><\/a><\/span><\/p>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-uagb-advanced-heading uagb-block-ca593468\"><h2 class=\"uagb-heading-text\">Find all this data via the unified interface of the Canadian Open Neuroscience Platform<\/h2><\/div>\n\n\n\n<div class=\"wp-block-stackable-image stk-block-image stk-block stk-3ad2de1\" data-block-id=\"3ad2de1\"><style>.stk-3ad2de1 .stk-img-wrapper{width:200px !important;}<\/style><figure><span class=\"stk-img-wrapper stk-image--shape-stretch\"><img loading=\"lazy\" decoding=\"async\" class=\"stk-img wp-image-1931\" src=\"https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/03\/CONP-datasets.png\" width=\"1878\" height=\"1877\" srcset=\"https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/03\/CONP-datasets.png 1878w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/03\/CONP-datasets-300x300.png 300w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/03\/CONP-datasets-1024x1024.png 1024w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/03\/CONP-datasets-150x150.png 150w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/03\/CONP-datasets-768x768.png 768w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/03\/CONP-datasets-1536x1536.png 1536w, https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2024\/03\/CONP-datasets-12x12.png 12w\" sizes=\"auto, (max-width: 1878px) 100vw, 1878px\" \/><\/span><\/figure><\/div>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-3e41869c wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-text-align-center wp-element-button\" href=\"https:\/\/portal.conp.ca\/\" target=\"_blank\" rel=\"noreferrer noopener\">Canadian Open Neuroscience Platform<\/a><\/div>\n<\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Since 2019, we have had an average of 112 new users per year, for a grand total of 562 users (research groups) including more than twenty companies (biotechnologies, artificial intelligence, neuro-imaging) from over 35 different countries.<\/p>\n\n\n\n<p class=\"has-small-font-size wp-block-paragraph\">* <em>The CONP Portal is a web interface that simplifies the access and sharing of datasets and tools, thereby facilitating the practice of Open Science in the neuroscience community.<\/em> <em>Our datasets are the most visited on the Canadian Open Neuroscience Platform.<\/em><\/p>\n\n\n\n<div class=\"wp-block-uagb-advanced-heading uagb-block-fe810bb7\"><h2 class=\"uagb-heading-text\"><strong><strong>Access to Internal Data for StoP-AD Centre Collaborators<\/strong><\/strong><\/h2><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Collaborators of the StoP-AD Centre may access internal datasets if they request it. To do so, they must sign a data use agreement and agree to publication policies. All scientific publications from our research group and our collaborators include the \u2018<em>PREVENT-AD Research Group<\/em>\u2018 among the co-authors. See<strong><em><span style=\"color: var(--ast-global-color-6);\" class=\"stk-highlight\"> <a href=\"https:\/\/www.centre-stopad.com\/en\/publications\/\" data-type=\"link\" data-id=\"https:\/\/www.centre-stopad.com\/fr\/publications\/\">Publications<\/a><\/span><\/em><\/strong>.<\/p>\n\n\n\n<div class=\"wp-block-uagb-advanced-heading uagb-block-abfb7af4\"><h2 class=\"uagb-heading-text\"><strong>Data sharing between Research and the Clinic for the benefit of patients<\/strong><\/h2><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Another goal of the CAP is to facilitate the exchange of data with healthcare professionals, thus accelerating the translation of research results into clinical practice. Bridges were created with 5 collaborating memory clinics (Moe Levin (CIUSSS de l'Ouest-de-l'\u00cele-de-Montr\u00e9al), McGill Centre for Studies in Aging (McGill University), Argyll Memory Clinic (CIUSSS de l'Estrie), Interdisciplinary Memory Clinic (Quebec) and MoCA Institute &amp; Clinic (Greenfield Park)).<\/p>\n\n\n\n<div class=\"wp-block-uagb-advanced-heading uagb-block-4c4df723\"><h2 class=\"uagb-heading-text\"><strong>Harmonization with other major Alzheimer's disease initiatives<\/strong><\/h2><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">The data integrated into CAP will be harmonized with other major Canadian and international Alzheimer's disease initiatives to facilitate the pooling of data on the different phases of Alzheimer's disease, thereby reducing the need to duplicate studies and capitalizing on the wealth of research data already available. Discussions and projects are ongoing.<\/p>\n\n\n\n<p class=\"has-small-font-size wp-block-paragraph\"><em>* This project is made possible by the Canadian Brain Research Fund, an innovative agreement between the Government of Canada (via Health Canada) and the Brain Canada Foundation.<\/em><\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Canadian Alzheimer Platform Acc\u00e8s aux donn\u00e9es The Canadian Alzheimer Platform (CAP) est la premi\u00e8re plateforme canadienne dot\u00e9e de l&rsquo;infrastructure n\u00e9cessaire pour acqu\u00e9rir, harmoniser et partager des donn\u00e9es sensibles sur la phase pr\u00e9clinique de la maladie d\u2019Alzheimer suivant le principe de la Science Ouverte. Acc\u00e8s aux donn\u00e9es pour la communaut\u00e9 scientifique Conditions d&rsquo;utilisation: Pour acc\u00e9der directement [&hellip;]<\/p>","protected":false},"author":1,"featured_media":909,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_eb_attr":"","_uag_custom_page_level_css":"","site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"normal-width-container","site-content-style":"unboxed","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","theme-transparent-header-meta":"enabled","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"_themeisle_gutenberg_block_has_review":false,"footnotes":""},"class_list":["post-1354","page","type-page","status-publish","has-post-thumbnail","hentry"],"uagb_featured_image_src":{"full":["https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2023\/10\/bold-science-for-brain-health-scaled-1.jpg",2560,1403,false],"thumbnail":["https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2023\/10\/bold-science-for-brain-health-scaled-1-150x150.jpg",150,150,true],"medium":["https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2023\/10\/bold-science-for-brain-health-scaled-1-300x164.jpg",300,164,true],"medium_large":["https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2023\/10\/bold-science-for-brain-health-scaled-1-768x421.jpg",768,421,true],"large":["https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2023\/10\/bold-science-for-brain-health-scaled-1-1024x561.jpg",1024,561,true],"1536x1536":["https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2023\/10\/bold-science-for-brain-health-scaled-1-1536x842.jpg",1536,842,true],"2048x2048":["https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2023\/10\/bold-science-for-brain-health-scaled-1-2048x1122.jpg",2048,1122,true],"trp-custom-language-flag":["https:\/\/www.centre-stopad.com\/wp-content\/uploads\/2023\/10\/bold-science-for-brain-health-scaled-1-18x10.jpg",18,10,true]},"uagb_author_info":{"display_name":"Jean-Michel Raoult","author_link":"https:\/\/www.centre-stopad.com\/en\/author\/centrestopad_ohk6km\/"},"uagb_comment_info":0,"uagb_excerpt":"Canadian Alzheimer Platform Acc\u00e8s aux donn\u00e9es The Canadian Alzheimer Platform (CAP) est la premi\u00e8re plateforme canadienne dot\u00e9e de l&rsquo;infrastructure n\u00e9cessaire pour acqu\u00e9rir, harmoniser et partager des donn\u00e9es sensibles sur la phase pr\u00e9clinique de la maladie d\u2019Alzheimer suivant le principe de la Science Ouverte. Acc\u00e8s aux donn\u00e9es pour la communaut\u00e9 scientifique Conditions d&rsquo;utilisation: Pour acc\u00e9der directement&hellip;","_links":{"self":[{"href":"https:\/\/www.centre-stopad.com\/en\/wp-json\/wp\/v2\/pages\/1354","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.centre-stopad.com\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.centre-stopad.com\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.centre-stopad.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.centre-stopad.com\/en\/wp-json\/wp\/v2\/comments?post=1354"}],"version-history":[{"count":9,"href":"https:\/\/www.centre-stopad.com\/en\/wp-json\/wp\/v2\/pages\/1354\/revisions"}],"predecessor-version":[{"id":3089,"href":"https:\/\/www.centre-stopad.com\/en\/wp-json\/wp\/v2\/pages\/1354\/revisions\/3089"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.centre-stopad.com\/en\/wp-json\/wp\/v2\/media\/909"}],"wp:attachment":[{"href":"https:\/\/www.centre-stopad.com\/en\/wp-json\/wp\/v2\/media?parent=1354"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}